Minnesota Lyme Action Support Group

Anaplasma rivels Lyme Disease as record numbers of
Minnesotans become ill from tick-borne diseases in 2010  
MN Dept. of Health
Congress Address Lyme Disease Issue
July 17, 2011. The all volunteer national Lyme Disease
Association (LDA) is pleased to announce the
introduction of a bill and proposed legislative actions
that focus attention on the growing concerns
surrounding Lyme and tick borne diseases.

Congressman Christopher Smith (R-NJ) introduced HR-
2557, the Lyme and Tick-Borne Disease Prevention,
Education, and Research Act of 2011, on Friday, July
15, 2011, along with cosponsors Frank Wolf (VA), Tim
Holden (PA), and Chris Gibson (NY).

Congressman Smith’s bill, HR-2557, requires the
Secretary of Health and Human Services to establish a
Tick-Borne Diseases Advisory Committee to address a
variety of important issues. The Committee will be
charged with advising Federal agencies on priorities
related to Lyme and tick-borne disease issues and will
be composed of scientists, representatives from
government agencies, health care providers and patient
representatives. The Committee is charged with
ensuring that a broad spectrum of scientific and stake-
holder viewpoints are represented in public health
policy decisions and that information disseminated to
the public and physicians is balanced.

Congressman Smith, Chairman of the Congressional
Lyme Disease Caucus for the past seven years, has
worked diligently to foster greater knowledge about tick-
borne diseases over the years. Amongst his many
Lyme-related endeavors, he hosted a Lyme and Tick-
Borne Diseases Forum last summer in Wall Township,
NJ, for health officials, medical professionals and the
public, with over 300 people in attendance. Pat Smith of
the LDA was one of the guest speakers.

Senator Richard Blumenthal (D-CT) has plans to
highlight legislation to combat the spread of Lyme
disease. He will meet with volunteer patient advocates
from the Connecticut based Lyme disease group, Time
for Lyme (TFL), an affiliate of the Lyme Disease
Association, at the Connecticut Agricultural Experiment
Station in New Haven on Monday, July 18, 2011.

Senator Blumenthal, who served an unprecedented five
terms as Attorney General in Connecticut, is known for
his efforts to make real and lasting difference in the
lives of the people. He has been a long-time public
defender of Lyme disease patients rights.

The Lyme Disease Association (LDA), an organization
that seeks to eliminate tick-borne diseases by funding
research, educating the public, and providing scientific
conferences for doctors, is grateful to Congressman
Smith, Senator Blumenthal, the bill cosponsors and staff
for their enduring commitment to improve the health of
countless patients suffering from Lyme and tick-borne
diseases.

For more information please visit the LDA website www.
LymeDiseaseAssociation.org


Contact your local PBS station requesting them to air
Under Our Skin documentary. Clicking on this site
http://www.underourskin.com/tv gives a state-by-state
local PBS tv schedule.

What can I do - letter writing
How To


6 minute YouTube video of Lyme Disease rally at
White House May 21, 2011.  
click here to view   There was a rally this week-end,
Saturday, May 21, in front of the White House to create
Lyme disease awareness and to protest the IDSA
(Infectious Diseases Society of America) treatment
guidelines. The guidelines restrict diagnosis to leave
many cases undiagnosed, and they limit treatment to
just a few weeks, which is not nearly enough for many
people.  People came from many states to participate in
the rally.  They wore Lyme green shirts and hats and
chanted, "Hey, Obama! Don't you care? Lyme disease
is everywhere!" and "Hey Hey, Ho Ho, IDSA has got to
go!" There were several people in wheelchairs. People
carried signs, some telling where they were from, others
with clever slogans. Many onlookers stood by and
watched. One said, "Ticks aren't choosy, will you be
next?
What can I do?
Intro to Federal Legislation
Write your representatives asking them to support
Federal Bill HR 2557
click here
State Bill S.F. No. 1381  click here
Lyme Disease in MN

Recently the “Lyme and Tick-Borne Diseases
Prevention, Education and Research Act of 2011

was formally introduced in both the U.S. House and
Senate (as H.R. 2557 and S. 1381, respectively).  The
passage of this groundbreaking legislation is critical to
establishing an Advisory Committee to address the issues
at a national level.  These goals are especially important
here, as Minnesota ranks 8th in the nation for Lyme
disease (Wisconsin ranks 7th)!  

The bill explicitly calls for the advisory committee to be
made up of balanced scientific as well as patient view
points.  The committee would be charged with providing
recommendations to Congress, the CDC, and the NIH.

I’d like to ask the MLA members and other interested
groups to have their members contact their MN US
Senators and Representatives to ask them to be co-
sponsors of this important legislation.  Senator Al Franken
was a co-sponsor upon introduction, and a letter of thanks
to him would be appreciated.  The contact list is available
at http://www.mnlyme.com/files/MN_List.pdf

Your help is vitally important with the Lyme Disease
struggle and our state wide support will definitely help
push this forward.

Regards,
MLA Legislative Team

This website was created to help raise awareness about Lyme disease in and around Minnesota